A Battle Against Bronchomalacia and Bronchstenosis
Hey, My name is Jackson and I was born 12-12-10 in Kettering General. After just a few short weeks I was hospitalised with breathing difficulties, after turning blue at home, the hospital gave me a tracheostomy to help my breathing. After over 400 days in Leicester Royal Infirmary and a few months in Kettering General, I am finally well enough to be at home. With the help of nurses, my Mummy and Daddy look after me 24/7 and I'm going to keep you updated :)
Jackson was nominated for a TinySuperHero cape by our friend D***** C**** They seek to “empower extraordinary kids, one cape at a time”. It arrived yesterday along with a note welcoming him to the TinySuperHero squad. How very cute. We are so blessed to have such wonderful selfless friends. Thank you so much xxx
Merry Christmas and a Happy New Year to all!
Merry Christmas from Jackson!
Jackson was tantrumly-terrified of father Christmas. Doh. Enjoyed the party til then though.
Playschool - this morning our 3rd 1:1 completed her tracheostomy training. This means from January Jackson is going to playschool like everyone else, WITHOUT A NURSE! What an incredible first term he’s had. He has made friends, he approaches teachers and children, he joins in with group activities and is just so happy to be there. I’m so so proud. Next term I will have to go with him (stay in the staff room) due to a delay with insurance, but his 1:1s will be totally responsible for his medical needs. Very very nervous but equally as pleased.
Am enjoying the holidays with a brand new tracheostomy and ventilator - hooray for lungs full of air! :-D
I have a character who,through certain events,is no longer able to breathe through his nose or mouth due to a deformity. My question is would he be able to breathe solely through a trach tube without the use of a ventilating (after being properly weaned,that is)? Or at least go with out it while…
Yes, without a ventilator and being properly weaned off, the trach on it’s own is enough for breathing. :)
14-12-13: After going shopping and creating havoc… I met Lightening McQueen!
"I nominated a special little boy who turned three yesterday for a tiny superhero cape. I’ve just found out he’s been sponsored and his cape has been mailed today.http://www.facebook.com/tinysuperheroes I’m so excited for him”
TinySuperheroes.com donates capes to kids who “exemplify strength and determination as they overcome illness and disability.”
This is absolutely amazing and we and unbelievably proud right now.